Feeling forgetful or confused? Finding out what is wrong is the first step to getting help.
In this section, we offer help sheets on every topic, issue, and concern relating to dementia that you might need support on.
Driving is something most people take for granted. It gives us freedom, flexibility and independence. While we will all need to step out from behind the wheel one day, conditions such as dementia can mean that the decision to stop driving needs to be planned for.
The National Dementia Helpline is for people with dementia, their carers, families and friends, health professionals, service providers, community organisations, students and people seeking information.
Alzheimer's Australia provides a range of sensitive and flexible services to support people with any type of dementia, their families and carers throughout the illness.
Alzheimer's Australia has a wealth of information for health professionals.
Alzheimer's Australia provides courses for people with dementia and their carers, and nationally recognised courses for health and aged care personnel.
Alzheimer’s Australia is committed to contributing towards Australian dementia research.
Your help and support is vital to Alzheimer's Australia. Read more about donations.
Find an event near you.
A dementia-friendly community is a place where people living with dementia are supported to live a high quality of life with meaning, purpose and value. For people with younger onset dementia, this also means being given the opportunity and support to stay at work or volunteer.
Dementia Awareness Month is held annually in September. Stay tuned for an update on Dementia Awareness Month 2015 which will be coming soon.
Caring for someone with dementia can be physically and emotionally tiring and stressful. Families and carers can easily become isolated, particularly if they are unable to leave the person they are caring for. Regular breaks mean that you can have a rest, go out, attend to business or go on a holiday and gives carers something to look forward to and experiences to look back on.
Breaks are important for the same reasons for people with dementia. They can mean time for socialising, meeting other people or for doing activities they enjoy. Breaks can also provide an opportunity for getting used to other people other than their immediate family providing support and caring.
There are lots of ways to take a break. It depends on what suits you and your family. Breaks can be:
Other family members and friends may be happy to help out by giving you a break from caring. Often it’s just a matter of asking.
The Australian and State governments fund a number of respite programs for regular, occasional and emergency breaks. They include out of home respite, in home respite and residential respite. Respite can also be provided in local day activity centres by attending planned activity groups. Some centres offer specialised activities for people with dementia.
The care offered by day centres ranges from a few hours to several days a week. Some centres offer extended hours, weekend or overnight care. Another way to take a break is to have a care worker come to the house to enable you to do things outside the house. They may also accompany the person with dementia to an activity that they enjoy. This is often called inhome respite as it begins and finishes at home.
Respite can also be used to provide care in an emergency or arranged for a longer period of time in a residential facility. To use residential respite, the person with dementia must be assessed by an Aged Care Assessment Team (ACAT) to determine the level of care required.
Contact details for your local ACAT can be found in the Age Page at the front of the telephone directory or visit the Agedcare Australia website or contact the National Dementia Helpline on 1800 100 500.
It is common for people with dementia to find new environments and new people unsettling. Because of this it is important to plan ahead for a positive respite experience. Many families and carers have found it useful to start using regular respite as early as possible so that everyone can get used to sharing dementia care. It is often best to start with small breaks and build up to longer ones.
You will know best how far in advance to tell the person with dementia about the break. Reassure them if they are anxious and make sure that they know that you are positive about the break, even if you’re feeling a little anxious yourself. Talking with other families and carers about ways they’ve managed to make respite a positive experience may give you some practical ideas for managing.
The Government is committed to providing respite care and has funded many different types of respite to help carers. Many organisations will help you take a break. These are usually called respite care services and include church groups, local councils and community groups.
Commonwealth Respite and Carelink Centres are specifically funded by the Australian government to let you know what is available for you and the person you are caring for. They will help you find respite care in your local area and can answer your queries about types and costs of respite. Contact the Commonwealth Carer Respite Centre on 1800 052 222 or visit the Commonwealth Respite and Carelink Centres website.
Commonwealth Carer Resource Centres provide carers with information and advice about relevant services and entitlements. Contact your closest Commonwealth Carer Resource Centre on 1800 242 636.
If the type of respite you want isn’t available in your local area let someone know. Contact Alzheimer’s Australia or carer advocacy groups for advice on how to raise the issue of unmet respite needs. People often find that when respite needs are not met, informing local press and politicians can make a difference now and in the long term.
Alzheimer's Australia is the national peak body for people living with dementia, their families and carers and provides leadership in policy and services.
To find out more, contact or call the National Dementia Helpline on 1800 100 500.