Help Sheets

Help Sheets provide advice, common sense approaches and practical strategies on the issues most commonly raised about dementia.


Help Sheets online order form

Help Sheets order form

You can now order Help Sheets and we will send them to you, free of charge.

Read more and place your order here.
 

Prefer to talk?

If you would prefer to talk to someone, call the National Dementia Helpline on 1800 100 500.
 

Our help sheets

Help Sheets are available on this page as PDFs which you can read, download, and print.

The Help Sheets have been categorised into sections to address the most commonly raised issues about dementia.

Click on the green category headings below to see all of the help sheets in each category.

 

About dementia
About dementia 01: What is dementia?

This Help Sheet describes dementia, who gets it and some of its most common forms. It describes some early signs of dementia and emphasises the importance of a timely medical diagnosis. Click "download" to see a list of languages that this Help Sheet is available in.

About dementia 02: Diagnosing dementia

This Help Sheet provides information about the early signs of dementia and the techniques used to diagnose dementia and the importance of an early and correct diagnosis. Click "download" to see a list of languages that this Help Sheet is available in.

About dementia 03: Diagnosis - informing the person with dementia

This Help Sheet discusses the issue of talking to the person with dementia about their diagnosis. It suggests approaches that families may take and provides some practical ways to talk about the diagnosis with the person with dementia. Click "download" to see a list of languages that this Help Sheet is available in.

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About dementia 04: Information for family and friends

This Help Sheet is designed for people with dementia and their families to provide information to friends, neighbours and others about dementia. It explains what dementia is, how it affects people and ways to help. Click "download" to see a list of languages that this Help Sheet is available in.

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About dementia 05: Information about dementia for young people

This Help Sheet is written especially for young people and answers some questions they frequently ask about dementia. Click "download" to see a list of languages that this Help Sheet is available in.

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About dementia 06: Information about dementia for parents and grandparents

This Help Sheet explains some of the ways that young people may be impacted when a person they are close to has dementia. It lists some of the questions that children may ask and ways for parents and grandparents to deal with these. Click "download" to see a list of languages that this Help Sheet is available in.

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About dementia 07: Early planning

This Help Sheet discusses ways to plan ahead and organise financial and legal affairs and lists people and organisations that can help. Click "download" to see a list of languages that this Help Sheet is available in.

About dementia 08: Next steps

This Help Sheet describes the different services available for people diagnosed with dementia, their families and carers. These include specialised dementia services, health and home support services. Click "download" to see a list of languages that this Help Sheet is available in.

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About dementia 09: Drug treatments and dementia

This Help Sheet discusses some of the drugs used to treat dementia. This includes drugs approved for the treatment of Alzheimer's disease which may improve memory and thinking, and also treat accompanying symptoms such as depression and anxiety. It also suggests questions that people with dementia, their families and carers should ask their doctor before being prescribed any of these drugs. Click "download" to see a list of languages that this Help Sheet is available in.

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About dementia 10: Genetics of dementia

This Help Sheet discusses the role of genetics in Alzheimer’s disease and other forms of dementia and whether the condition can be inherited. Click "download" to see a list of languages that this Help Sheet is available in.

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About dementia 11: Dementia research

This Help Sheet provides a broad overview of current research into dementia and discusses some of the issues involved in participating in research studies Click "download" to see a list of languages that this Help Sheet is available in.

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About dementia 12: Memory changes

This Help Sheet describes some of the differences between memory loss as a part of normal ageing and as a symptom of dementia. It provides some tips for keeping your memory sharp. Click "download" to see a list of languages that this Help Sheet is available in.

About dementia 13: Alzheimer's disease

This Help Sheet describes the symptoms of Alzheimer's disease, the most common form of dementia, as well as its causes, progression and treatment. Click "download" to see a list of languages that this Help Sheet is available in.

About dementia 14: Progression of Alzheimer's disease

This Help Sheet discusses the progression of Alzheimer's disease from the early stages to the final stages of advanced dementia. Click "download" to see a list of languages that this Help Sheet is available in.

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About dementia 15: Down syndrome and Alzheimer's disease

This Help Sheet explains what is currently known about the link between Down syndrome and Alzheimer's disease and provides information about where to find additional support. Click "download" to see a list of languages that this Help Sheet is available in.

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About dementia 16: Vascular dementia
This Help Sheet describes the types of vascular dementia, and their causes, diagnosis, treatment and progression. Click "download" to see a list of languages that this Help Sheet is available in.
About dementia 17: Frontotemporal dementia
This Help Sheet describes a type of dementia known as frontotemporal dementia, which has different forms including behavioural-variant frontotemporal dementia, progressive non-fluent aphasia and semantic dementia. Click "download" to see a list of languages that this Help Sheet is available in.
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About dementia 18: Alcohol related dementia and Wernicke-Korsakoff syndrome
This Help Sheet discusses alcohol related dementia and Wernicke-Korsakoff syndrome, their causes, symptoms and treatment. Click "download" to see a list of languages that this Help Sheet is available in.
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About dementia 19: HIV associated dementia
This Help Sheet describes HIV associated dementia and related conditions, their causes, symptoms, diagnosis and treatment. Click "download" to see a list of languages that this Help Sheet is available in.
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About dementia 20: Lewy body disease
This Help Sheet has been developed to assist your understanding of Lewy body disease and the disorders that arise from it. Click "download" to see a list of languages that this Help Sheet is available in.
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About dementia 21: Younger onset dementia
This Help Sheet discusses younger onset dementia, sometimes called early onset dementia. It emphasises the importance of a correct diagnosis and some aspects of caring for someone with younger onset dementia. Click "download" to see a list of languages that this Help Sheet is available in.
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About dementia 22: Posterior Cortical Atrophy
Posterior Cortical Atrophy (PCA) is a type of dementia involving problems with visual processing and/or literacy skills. This Help Sheet has been developed to assist your understanding of PCA and its symptoms, diagnosis, progression and treatment. Click "download" to see a list of languages that this Help Sheet is available in.
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Changed behaviours and dementia
Changed behaviours and dementia 01: Changed behaviours
This Help Sheet looks at some of the common behaviour changes that may occur when a person has dementia. Reasons for the changes and some general guidelines for coping with them are discussed. Click "download" to see a list of languages that this Help Sheet is available in.
Changed behaviours and dementia 02: Problem solving
This Help Sheet discusses some ways to think about any changes in behaviours that are occurring as a result of dementia. It describes a problem solving approach that may help you manage any behaviours if and when they arise. Click "download" to see a list of languages that this Help Sheet is available in.
Changed behaviours and dementia 03: Depression and dementia
This Help Sheet looks at depression in people with dementia, how to recognise it, and importantly, ways in which it may be treated. Click "download" to see a list of languages that this Help Sheet is available in.
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Changed behaviours and dementia 04: Wandering
This Help Sheet looks at the wandering behaviour of some people with dementia. The reasons for wandering are discussed, as well as some suggestions for ways to manage it. Click "download" to see a list of languages that this Help Sheet is available in.
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Changed behaviours and dementia 05: Sundowning
This Help Sheet explains why some people with dementia are particularly restless in the afternoon and evening, a condition sometimes known as sundowning. It gives some practical advice to families and carers for managing sundowning. Click "download" to see a list of languages that this Help Sheet is available in.
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Changed behaviours and dementia 06: Anxious behaviours
This Help Sheet discusses the causes of anxious behaviours which may be a distressing sympton of dementia and suggests some ways to manage them effectively, as well as some sources of additional help. Click "download" to see a list of languages that this Help Sheet is available in.
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Changed behaviours and dementia 07: Aggressive behaviours
This Help Sheet discusses the causes of aggressive behaviours, which may sometimes occur as a result of dementia, suggests some ways to manage and some sources of help. Aggressive behaviours
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Changed behaviours and dementia 08: Agitated behaviours
This Help Sheet discusses some of the causes of agitated behaviours, which can be a very concerning symptom of dementia and suggests ways to prevent and manage them if they occur. Click "download" to see a list of languages that this Help Sheet is available in.
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Changed behaviours and dementia 09: Hallucinations and false ideas
This Help Sheet discusses some of the causes of hallucinations and false ideas such as paranoia and delusions and suggests ways that families and carers can deal with them. Click "download" to see a list of languages that this Help Sheet is available in.
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Changed behaviours and dementia 10: Disinhibited behaviours
This Help Sheet describes the signs and causes of disinhibited behaviours that are tactless, inappropriate or offensive as well as some sources of help. Click "download" to see a list of languages that this Help Sheet is available in.
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Looking after families and carers
Looking after families and carers 01: Taking a break
This Help Sheet discusses the importance of taking a break from caring, how to organise it and who can help. Click "download" to see a list of languages that this Help Sheet is available in.
Looking after families and carers 02: Taking care of yourself
This Help Sheet discusses the importance of families and carers looking after themselves while they are caring for someone with dementia. It discusses some ways to manage stress and to ensure that support is there so that you can continue in your caring role. Click "download" to see a list of languages that this Help Sheet is available in.
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Looking after families and carers 03: Feelings
This Help Sheet discusses some of the feelings that carers of people with dementia often experience. These may include guilt, grief, loss and anger. Click "download" to see a list of languages that this Help Sheet is available in.
Looking after families and carers 04: Men and caring
This Help Sheet describes some of the issues that may affect men who are caring for a person with dementia. Click "download" to see a list of languages that this Help Sheet is available in.
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Looking after families and carers 05: Coping after the death of someone with dementia
This Help Sheet discusses some of the feeling you may be experiencing when the person you are caring for dies. It suggests some ways to help you deal with these feelings and some practical ways you can deal with the changes in your life. Click "download" to see a list of languages that this Help Sheet is available in.
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Caring for someone with dementia
Caring for someone with dementia 01: Communication
This Help Sheet explains some of the changes in communication that occur as a result of dementia and suggests ways that families and carers can help. It also includes some personal tips on communication written by a person with dementia. Click "download" to see a list of languages that this Help Sheet is available in.
Caring for someone with dementia 02: Therapies and communication approaches
This Help Sheet briefly explains three approaches to communicating with people with dementia – Validation Therapy, Music Therapy and Reminiscence. Many families and carers find these approaches helpful in providing support that is respectful and dignified when communication is difficult. Click "download" to see a list of languages that this Help Sheet is available in.
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Caring for someone with dementia 03: Safety issues
This Help Sheet discusses some of the safety issues that need to be considered when caring for someone with dementia. It provides some tips for safety inside and outside the home, and a basic safety checklist for use by families and carers. Click "download" to see a list of languages that this Help Sheet is available in.
Caring for someone with dementia 04: Caring for someone who lives alone
This Help Sheet addresses concerns families and carers may have when someone with dementia lives alone, and some ways to help the person live alone safely. Click "download" to see a list of languages that this Help Sheet is available in.
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Caring for someone with dementia 05: Activities
This Help Sheet provides information about planning and providing appropriate activities for people with dementia. Click "download" to see a list of languages that this Help Sheet is available in.
Caring for someone with dementia 06: Making the most of respite care
This Help Sheet discusses some of the ways that families and carers can make respite care a positive experience for themselves and for the person with dementia. It provides some practical suggestions for planning and using respite. Click "download" to see a list of languages that this Help Sheet is available in.
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Caring for someone with dementia 07: Driving

This Help Sheet describes the effects that dementia may have on driving skills and suggests ways to help a driver who has been diagnosed with dementia. Click "download" to see a list of languages that this Help Sheet is available in.

Caring for someone with dementia 08: Travelling
This Help Sheet provides information for families and carers about travelling with someone with dementia. It lists some warning signs for when travel may be inappropriate and some helpful suggestions for planning a trip and for travelling. Click "download" to see a list of languages that this Help Sheet is available in.
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Caring for someone with dementia 09: Working with doctors
This Help Sheet discusses effective ways of working together with the many doctors and medical specialists you will meet to obtain the information and support that you need. Click "download" to see a list of languages that this Help Sheet is available in.
Caring for someone with dementia 10: Going to hospital
This Help Sheet provides information to make a hospital admission easier for you and for the person with dementia. Click "download" to see a list of languages that this Help Sheet is available in.
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Caring for someone with dementia 11: Pain
This Help Sheet discusses some of the causes and ways to recognise if a person with dementia is in pain and how to treat pain quickly and effectively. Click "download" to see a list of languages that this Help Sheet is available in.
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Caring for someone with dementia 12: Eating
This Help Sheet provides a number of practical strategies for people caring for someone with dementia who is having problems eating. Click "download" to see a list of languages that this Help Sheet is available in.
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Caring for someone with dementia 13: Nutrition
This Help Sheet discusses the importance of good nutrition, and provides some practical ways that families and carers can ensure that a person with dementia is well nourished. Click "download" to see a list of languages that this Help Sheet is available in.
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Caring for someone with dementia 14: Dental care
This Help Sheet provides information about caring for the dental health of people with dementia. It discusses some of the possible causes of dental problems as well as practical advice for maintaining the best possible dental health. Click "download" to see a list of languages that this Help Sheet is available in.
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Caring for someone with dementia 15: Dressing
This Help Sheet explains some of the problems that people with dementia may have when dressing. It offers families and carers a number of practical suggestions for managing these common problems. Click "download" to see a list of languages that this Help Sheet is available in.
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Caring for someone with dementia 16: Sleeping
This Help Sheet discusses some of the causes of sleeping problems and provides some suggestions for families and carers to help manage this common, yet difficult problem. Click "download" to see a list of languages that this Help Sheet is available in.
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Caring for someone with dementia 17: Hygiene
This Help Sheet looks at the issue of hygiene for people with dementia. It discusses some of the possible causes of problems, as well as suggestions to help families and carers manage bathing, shaving, dental, hair and nail care. Click "download" to see a list of languages that this Help Sheet is available in.
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Caring for someone with dementia 18: Continence
This Help Sheet explains incontinence and some of the reasons that it may occur in people with dementia. It suggests ways that families and carers can manage the problem. Click "download" to see a list of languages that this Help Sheet is available in.
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Caring for someone with dementia 19: Intimacy and sexual issues
This Help Sheet discusses intimacy and sexual issues for people with dementia, their families and carers. It describes the importance of these issues in their lives and ways to deal with some of the problems that may arise. Click "download" to see a list of languages that this Help Sheet is available in.
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Caring for someone with dementia 20: Later stages of dementia
This Help Sheet describes what to expect in the later stages of dementia as a person with dementia becomes increasinlgy frail and some issues that may be useful to consider. Click "download" to see a list of languages that this Help Sheet is available in.
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Caring for someone with dementia 21: Palliative care
This Help Sheet provides some information on the palliative care approaches that play a crucial role in the care of the person who is dying. It provides information about how the person with dementia can be supported to die in comfort and with dignity. Click "download" to see a list of languages that this Help Sheet is available in.
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Residential care and dementia
Residential care and dementia 01: Deciding on residential care
This Help Sheet provides information for families and carers about the types of residential care available for people with dementia, what to look for and some practical suggestions for making the move. Click "download" to see a list of languages that this Help Sheet is available in.
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Residential care and dementia 02: Which residential facility?
This Help Sheet provides information for families and carers of people with dementia who need to move to residential care. It discusses some of the things to consider when choosing a residential facility that will suit the needs of the person with dementia. Click "download" to see a list of languages that this Help Sheet is available in.
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Residential care and dementia 03: Caring partnerships
This Help Sheet provides information for families and carers of people with dementia who have recently moved into residential care. It emphasises the value of a caring partnership with residential staff. Click "download" to see a list of languages that this Help Sheet is available in.
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Residential care and dementia 04: Good care in a residential facility
This Help Sheet lists some of the important aspects of good care for people with dementia who are living in residential facilities, including the involvement of relatives and friends. Click "download" to see a list of languages that this Help Sheet is available in.
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Residential care and dementia 05: Coping with placement
This Help Sheet provides suggestions for families and carers for dealing with their changing role once the person with dementia has moved to a residential facility. It includes practical suggestions for continuing a caring relationship and ways to manage any problems that may arise when visiting. Click "download" to see a list of languages that this Help Sheet is available in.
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Residential care and dementia 06: Information and support
This Help Sheet lists a number of services and organisations that can provide families and carers of people with dementia with information and support about residential care. Click "download" to see a list of languages that this Help Sheet is available in.
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Information for people with dementia
Information for people with dementia 01: What is dementia?
If you have been diagnosed with dementia, this Help Sheet may be useful. It talks about dementia and where you can go for further information. Click "download" to see a list of languages that this Help Sheet is available in.
Information for people with dementia 02: Early planning
If you have been diagnosed with dementia, this Help Sheet may be useful. It makes suggestions about planning for the future. It also tells you who can assist you to do this. Click "download" to see a list of languages that this Help Sheet is available in.
Information for people with dementia 03: Looking after yourself
If you have been diagnosed with dementia, this Help Sheet may be useful. It suggests ways to look after yourself and some people who can assist you to do this. Click "download" to see a list of languages that this Help Sheet is available in.
Information for people with dementia 04: Driving and dementia

If you have been diagnosed with dementia, this Help Sheet may be useful. It provides important information about driving and dementia. Click "download" to see a list of languages that this Help Sheet is available in.

Information for people with dementia 05: Living alone
If you have been diagnosed with dementia, and you live alone, this Help Sheet may be useful. It makes suggestions about how you can help yourself and who can assist you to continue living safely on your own. Click "download" to see a list of languages that this Help Sheet is available in.
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Information for people with dementia 06: Feelings and adjusting to change
If you have been diagnosed with dementia, this Help Sheet may be useful. It explains some of the feelings you might be experiencing, and some ways to adjust to the changes that dementia brings. Click "download" to see a list of languages that this Help Sheet is available in.
Information for people with dementia 07: Keeping involved and active
If you have been diagnosed with dementia, this Help Sheet may be useful. It discusses the importance of keeping involved and active and suggests ways that you can do this. Click "download" to see a list of languages that this Help Sheet is available in.
Information for people with dementia 08: Talking about the diagnosis
If you have been diagnosed with dementia, this Help Sheet may be useful. It suggests some things to consider when talking about your diagnosis. Click "download" to see a list of languages that this Help Sheet is available in.
Information for people with dementia 09: Talking with your doctor
If you have been diagnosed with dementia, this Help Sheet may be useful. It discusses ways of talking with your doctor to make sure that you obtain the health care, advice and support you want. Click "download" to see a list of languages that this Help Sheet is available in.
Information for people with dementia 10: Making employment decisions
If you have been diagnosed with dementia and you are working, this Help Sheet may be useful. It offers suggestions for making decisions about changes in your work life. Click "download" to see a list of languages that this Help Sheet is available in.
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Information for people with dementia 11: How Alzheimer's Australia can help
This Help Sheet provides you with information on the resources Alzheimer's Australia has available to provide support to you and your family. Click "download" to see a list of languages that this Help Sheet is available in.
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The environment and dementia
The environment and dementia 01: The kitchen
This Help Sheet suggests some ways to make the kitchen as useful and safe as possible for a person with dementia, their family and carers. Not all suggestions will suit all people or situations, but some people may find a solution to a particular problem they are experiencing in the kitchen. Click "download" to see a list of languages that this Help Sheet is available in.
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The environment and dementia 02: The laundry
This Help Sheet suggests some ways to make the laundry as useful and safe as possible for a person with dementia, their family and carers. Not all suggestions will suit all people or situations, but some people may find a solution to a particular problem they are experiencing in the laundry. Click "download" to see a list of languages that this Help Sheet is available in.
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The environment and dementia 03: The living room
This Help Sheet suggests some ways to make the living room as useful and safe as possible for a person with dementia, their family and carers. Not all suggestions will suit all people or situations, but some people may find a solution to a particular problem they are experiencing in the living room. Click "download" to see a list of languages that this Help Sheet is available in.
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The environment and dementia 04: The bathroom and toilet
This Help Sheet suggests some ways to make the bathroom and toilet as useful and safe as possible for a person with dementia, their family and carers. Not all suggestions will suit all people or situations, but some people will find a solution to a particular problem they are experiencing in the bathroom or toilet. Click "download" to see a list of languages that this Help Sheet is available in.
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The environment and dementia 05: The bedroom
This Help Sheet suggests some ways to make the bedroom as useful and safe as possible for a person with dementia, their family and carers. Not all suggestions will suit all people or situations, but some people will find a solution to a particular problem they are experiencing in the bedroom. Click "download" to see a list of languages that this Help Sheet is available in.
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The environment and dementia 06: The building
This Help Sheet suggests some ways to make the floors, doors, windows and stairs as useful and safe as possible for a person with dementia, their family and carers. Not all suggestions will suit all people or situations, but some people will find a solution to a particular problem they are experiencing with the building. Click "download" to see a list of languages that this Help Sheet is available in.
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The environment and dementia 07: Furnishings and décor
This Help Sheet suggests some ways to make furnishings and décor as useful and safe as possible for a person with dementia, their family and carers. Not all suggestions will suit all people or situations, but some people will find a solution to a particular problem they are experiencing with furnishings and décor. Click "download" to see a list of languages that this Help Sheet is available in.
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The environment and dementia 08: Utilities
This Help Sheet suggests some ways to make the heating, cooling, lighting, electricity and gas as useful and safe as possible for a person with dementia, their family and carers. Not all suggestions will suit all people or situations, but some people will find a solution to a particular problem they are experiencing with utilities. Click "download" to see a list of languages that this Help Sheet is available in.
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The environment and dementia 09: Outside
This Help Sheet suggests some ways to make the outside areas of the home as useful and safe as possible for a person with dementia, their family and carers. Not all suggestions will suit all people or situations, but some people will find a solution to a particular problem they are experiencing outside the house. Click "download" to see a list of languages that this Help Sheet is available in.
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The environment and dementia 10: New housing and renovations
Renovating or moving to a new house can present many extra challenges for a person with dementia, their family and carers. This Help Sheet discusses some design features for consideration when renovating or moving house. Click "download" to see a list of languages that this Help Sheet is available in.
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The environment and dementia 11: Memory aids in the home
Memory loss is one of the main symptoms of dementia. This Help Sheet suggests some aids that can help compensate for a failing memory. Not all suggestions will suit all people or situations, but some people will find a solution to particular problems occurring as a result of memory loss. Click "download" to see a list of languages that this Help Sheet is available in.
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The environment and dementia 12: Creating a calming environment
This Help Sheet suggests ways to create a calming atmosphere in the home of a person with dementia. Not all suggestions will suit all people or situations, but some people will find a solution to particular problems they are experiencing in the home. Click "download" to see a list of languages that this Help Sheet is available in.
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The environment and dementia 13: Pets
Pets are an important part of the life of many people. This Help Sheet discusses some of the benefits of pets for people with dementia. Click "download" to see a list of languages that this Help Sheet is available in.
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The environment and dementia 14: Health and safety for carers
The home is the workplace for carers and service providers of people with dementia. This Help Sheet discusses some of the health and safety issues that arise when the home is the workplace of carers and service providers. Click "download" to see a list of languages that this Help Sheet is available in.
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Aboriginal and Torres Strait Islander people
Aboriginal and Torres Strait Islander people 01: What is dementia?

This Help Sheet describes dementia, who gets it and some of its most common forms. It describes some early signs of dementia and emphasises the importance of a timely medical diagnosis. Click "download" to see a list of languages that this Help Sheet is available in.

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Aboriginal and Torres Strait Islander people 02: Diagnosing dementia

This Help Sheet provides information about the early signs of dementia and the techniques used to diagnose dementia and the importance of an early and correct diagnosis. Click "download" to see a list of languages that this Help Sheet is available in.

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Aboriginal and Torres Strait Islander people 03: Information for family and friends

This Help Sheet is designed for people with dementia and their families to provide information to friends, neighbours and others about dementia. It explains what dementia is, how it affects people and ways to help. Click "download" to see a list of languages that this Help Sheet is available in.

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Aboriginal and Torres Strait Islander people 04: Memory changes

This Help Sheet describes some of the differences between memory loss as a part of normal ageing and as a symptom of dementia. It provides some tips for keeping your memory sharp. Click "download" to see a list of languages that this Help Sheet is available in.

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Aboriginal and Torres Strait Islander people 05: Alzheimer's disease

This Help Sheet describes the symptoms of Alzheimer's disease, the most common form of dementia, as well as its causes, progression and treatment. Click "download" to see a list of languages that this Help Sheet is available in.

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Lewy body disease
Lewy body disease 01: Lewy body disease
Lewy body disease is a common neurodegenerative disease of ageing that is considered to be a spectrum disease. Click "download" to see a list of languages that this Help Sheet is available in.
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Lewy body disease 02: Cognitive (thinking) changes in Lewy body disease
Lewy body disease is a common neurodegenerative disease of ageing that is considered to be a spectrum disease. Click "download" to see a list of languages that this Help Sheet is available in.
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Lewy body disease 03: Neuropsychiatric (behavioural) changes in Lewy body disease
Lewy body disease is a common neurodegenerative disease of ageing that is considered to be a spectrum disease. Click "download" to see a list of languages that this Help Sheet is available in.
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Lewy body disease 04: Motor (physical) changes in Lewy body disease
Lewy body disease is a common neurodegenerative disease of ageing that is considered to be a spectrum disease. Click "download" to see a list of languages that this Help Sheet is available in.
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Lewy body disease 05: Autonomic (involuntary function) changes in Lewy body disease
Lewy body disease is a common neurodegenerative disease of ageing that is considered to be a spectrum disease. Click "download" to see a list of languages that this Help Sheet is available in.
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Lewy body disease 06: Information for family and friends
Lewy body disease is a common neurodegenerative disease of ageing that is considered to be a spectrum disease. Click "download" to see a list of languages that this Help Sheet is available in.
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Lewy body disease 07: Information for home and community care workers
Lewy body disease is a common neurodegenerative disease of ageing that is considered to be a spectrum disease. Click "download" to see a list of languages that this Help Sheet is available in.
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Lewy body disease 08: Information for day placement workers
Lewy body disease is a common neurodegenerative disease of ageing that is considered to be a spectrum disease. Click "download" to see a list of languages that this Help Sheet is available in.
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Lewy body disease 09: Information for acute care workers
Lewy body disease is a common neurodegenerative disease of ageing that is considered to be a spectrum disease. Click "download" to see a list of languages that this Help Sheet is available in.
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Lewy body disease 10: Information for care facilities
Lewy body disease is a common neurodegenerative disease of ageing that is considered to be a spectrum disease. Click "download" to see a list of languages that this Help Sheet is available in.
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Younger onset dementia
Younger onset dementia 01: Younger onset dementia - an overview
This Help Sheet discusses younger onset dementia, sometimes called early onset dementia. It emphasises the importance of a correct diagnosis and some aspects of caring for someone with younger onset dementia. Click "download" to see a list of languages that this Help Sheet is available in.
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Younger onset dementia 02: Planning ahead: decision making capacity and the law
This Help Sheet discusses how to prepare for the time when a person with dementia will lose their ability to make informed decisions. It explains substitute decision-maker arrangements and provides links to state and territory specific information. Click "download" to see a list of languages that this Help Sheet is available in.
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Younger onset dementia 03: Attention and memory
This Help Sheet describes the attention and memory changes that are often experienced by people with younger onset dementia. It also provides suggested strategies to compensate for difficulties in these areas. Click "download" to see a list of languages that this Help Sheet is available in.
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Younger onset dementia 04: Language and communication
This Help Sheet discusses aspects of language that may be challenging for people with younger onset dementia. It provides strategies for families and carers that may help to improve and encourage communication despite these difficulties. Click "download" to see a list of languages that this Help Sheet is available in.
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Younger onset dementia 05: Addressing challenges
This Help Sheet provides strategies to help deal with some of the everyday challenges that people with younger onset dementia face. It suggests strategies that may help individuals with younger onset dementia to overcome barriers and remain engaged in their family and community life. Click "download" to see a list of languages that this Help Sheet is available in.
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Younger onset dementia 06: Employment
If a person with younger onset dementia is still employed, decisions will have to be made about eventual changes to their work life. This Help Sheet discusses decision making and advocacy for people with younger onset dementia who wish to continue working, and provides assistance to help plan ahead. Click "download" to see a list of languages that this Help Sheet is available in.
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Younger onset dementia 07: Health, wellbeing and lifestyle
This Help Sheet discusses health and lifestyle choices for people with a diagnosis of younger onset dementia and their families and carers. Click "download" to see a list of languages that this Help Sheet is available in.
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Tips to assist social engagement
Tips to assist social engagement 01: Tips for friends
This Sheet gives you a few tips on how you can support a friend with dementia and their family. You can make a difference. Click "download" to see a list of languages that this Help Sheet is available in.
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Tips to assist social engagement 02: Tips for visiting
Here are a few tips you may find useful when visiting your friend or family member, whether they live at home or in residential care. Click "download" to see a list of languages that this Help Sheet is available in.
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Tips to assist social engagement 03: Tips for holiday cheer
Holiday celebrations and religious festivities can be stressful for carers and people with dementia. Here are some tips on how to make life easier at these times. Click "download" to see a list of languages that this Help Sheet is available in.
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Tips to assist social engagement 04: Tips for art at home
Artistic expression should be a part of living positively with dementia. Here are a few tips on how to create art at home with the person you care for. Click "download" to see a list of languages that this Help Sheet is available in.
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Tips to assist social engagement 05: Tips for music at home
For people with memory loss, music and songs have a special significance. Here are a few tips on how to use music at home with your friend or relative. Click "download" to see a list of languages that this Help Sheet is available in.
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Dementia Q&A
Dementia Q&A 01: Drug treatments for Alzheimer's disease - Cholinesterase inhibitors
Three drugs in a class called cholinesterase inhibitors are used in Australia to treat Alzheimer’s disease. This sheet provides information about how these drugs work, who might benefit, how they are prescribed and what questions people should ask their doctor if being prescribed any of these drugs. Click "download" to see a list of languages that this Help Sheet is available in.
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Dementia Q&A 02: PBS subsidies for cholinesterase inhibitors: what are the conditions?
Drugs called cholinesterase inhibitors are approved for listing on the Pharmaceutical Benefits Scheme (PBS) for treating people with Alzheimer's disease who meet certain criteria. This sheet provides information about the conditions that need to be met in order to receive these medications at the subsidised rate. Click "download" to see a list of languages that this Help Sheet is available in.
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Dementia Q&A 03: Drug treatments for Alzheimer’s disease - Memantine
Memantine is one of a number of drugs that are available for the treatment of Alzheimer’s disease. This drug may alleviate symptoms in the middle and later stages of Alzheimer’s disease. This sheet provides information about how memantine works, who might benefit and what questions people should ask their doctor if being prescribed this drug. Click "download" to see a list of languages that this Help Sheet is available in.
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Dementia Q&A 04: Drugs used to relieve behavioural and psychological symptoms of dementia
People with dementia may at some point in their illness develop behavioural or psychological symptoms. While it is important to try to understand and address the underlying reasons for these problems, it may be necessary at times to prescribe medication. This sheet describes the different types of drugs that may be prescribed. Click "download" to see a list of languages that this Help Sheet is available in.
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Dementia Q&A 05: Risperidone for treatment of behavioural symptoms in dementia
Risperidone is an antipsychotic medication approved in Australia for the treatment of behavioural disturbances characterised by psychotic symptoms and aggression in people with dementia where non-drug therapies have been unsuccessful. This sheet explains current knowledge and concerns about risperidone for people with dementia. Click "download" to see a list of languages that this Help Sheet is available in.
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Dementia Q&A 06: Mental exercise and dementia
Exercising the brain has a part to play in a positive, healthy lifestyle in the same way as physical exercise and helps maintain a well-functioning brain. This sheet outlines the part that mentally stimulating activity can play in promoting a healthy lifestyle and its potential to reduce the risk of dementia, and to benefit people with dementia. Click "download" to see a list of languages that this Help Sheet is available in.
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Dementia Q&A 07: What you eat and drink and your brain
Diet is one factor researchers are investigating for its role in reducing the risk of dementia and for the assistance a healthy diet may provide to people who have dementia. This sheet outlines the part that diet can play in promoting a healthy brain. Click "download" to see a list of languages that this Help Sheet is available in.
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Dementia Q&A 08: Physical exercise and dementia
Physical exercise is essential for maintaining good blood flow to the brain and may encourage new brain cell growth and survival. This sheet outlines the role that physical exercise can play in reducing the risk of developing dementia and the benefits it offers to people with dementia. Click "download" to see a list of languages that this Help Sheet is available in.
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Dementia Q&A 09: Safer walking for people with dementia: approaches and technologies
People with dementia can derive great benefit from continuing to enjoy walking. However, for some there may be an increased risk of wandering, injury or getting lost. This sheet provides information about how walking can be made safer for people with dementia, and less worrying for their families and carers. Click "download" to see a list of languages that this Help Sheet is available in.
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Dementia Q&A 10: Tests used in diagnosing dementia
This sheet explains the more common tests and assessments doctors currently use to diagnose dementia. It will help you to understand the process involved in diagnosing dementia. Those who are being assessed for dementia will find it helpful to be prepared for what, for some people, may be a long and emotionally difficult process (this sheet is currently under review). Click "download" to see a list of languages that this Help Sheet is available in.
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Dementia Q&A 11: Diagnostic Criteria for Dementia

New diagnostic criteria for dementia are regularly being developed. These revisions incorporate the scientific knowledge and technological advances gained in recent times and reflect the current state of understanding regarding the detection and diagnosis of dementia. This sheet provides information about recent changes to the diagnostic criteria for dementia and related conditions, and the use of biomarkers for earlier and more accurate diagnosis.

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Dementia Q&A 12: Genetics of dementia
People affected by dementia are often concerned about whether the condition can be inherited. The genetics of dementia are complex and not yet fully understood. This sheet discusses our current knowledge and the latest research on the role of genetics in Alzheimer's disease and other forms of dementia. Click "download" to see a list of languages that this Help Sheet is available in.
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Dementia Q&A 13: Mild Cognitive Impairment (MCI)
Some people experience changes in memory and other cognitive (thinking) functions greater than that usually experienced with ageing, but without other signs of dementia. This is called Mild Cognitive Impairment (MCI). This sheet provides information about what MCI is and what it means to be told that you have MCI. Click "download" to see a list of languages that this Help Sheet is available in.
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Dementia Q&A 14: Vascular Cognitive Impairment
Vascular cognitive impairment is a decline in thinking abilities caused by disease that damages the brain's blood vessels. Vascular disease may cause cognitive impairment on its own, and can also contribute to impairments in thinking and behaviour in a person with another brain disease such as Alzheimer's. This sheet describes the causes, consequences, diagnosis and treatment of vascular cognitive impairment. Click "download" to see a list of languages that this Help Sheet is available in.
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Dementia Q&A 15: Depression and dementia
Although it is sometimes difficult to distinguish between them and they can occur together, dementia and depression are different conditions requiring appropriate responses and treatment. The purpose of this sheet is to help people to identify depression and to provide them with information that will help them to raise issues with their clinicians. Click "download" to see a list of languages that this Help Sheet is available in.
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Dementia Q&A 16: Pain and Dementia
People with dementia may be less able to communicate to their carers that they are in pain, resulting in reduced quality of life. This can be avoided by looking out for non-verbal signs of pain and providing adequate treatment. This sheet provides information about appropriate assessment and management of pain for people with dementia. Click "download" to see a list of languages that this Help Sheet is available in.
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Dementia Q&A 17: Brain donation

Dementia is an illness of the brain. In order to understand brain diseases, researchers need access to brain tissue from people generous enough to donate their brain after death. This sheet provides information to help you make a decision about donating your brain and how to go about it. Click "download" to see a list of languages that this Help Sheet is available in.

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Dementia Q&A 18: Rights to health information
Can doctors share the health information of a patient with dementia with family or friends caring for them? This sheet explains what is allowed under the disclosure provisions of the Privacy Act, and how these provisions may apply to people with dementia, their families and carers. Click "download" to see a list of languages that this Help Sheet is available in.
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Dementia Q&A 19: Aluminium and Alzheimer's disease
Aluminium is one of a number of factors that has been suggested as a cause for Alzheimer's disease. However, the balance of evidence does not support a specific role for aluminium in Alzheimer's disease. This sheet examines the role of aluminium in the body and the evidence for a connection between aluminium and Alzheimer's disease. Click "download" to see a list of languages that this Help Sheet is available in.
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Dementia Q&A 20: Anaesthesia for older people and people with dementia
For a long time, there have been anecdotal reports from family members that their older relative "has never been the same since the operation". Some older people do experience changes after surgery with general anaesthesia, but for the majority these will be temporary. This sheet describes the different types of problems that may occur. This sheet is currently under review. Click "download" to see a list of languages that this Help Sheet is available in.
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Dementia Q&A 21: Souvenaid - A dietary treatment for mild Alzheimer's disease
Souvenaid is a new nutritional supplement for people with mild Alzheimer’s disease. It contains a combination of nutrients that are thought to support brain functions affected in early Alzheimer’s. Souvenaid is intended to be used under medical supervision. This Help Sheet describes what Souvenaid is, how it works, how it should be used, and who may benefit from its use. Click "download" to see a list of languages that this Help Sheet is available in.
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Dementia Q&A 22: Preventing Financial Abuse of People with Dementia

This Q&A sheet explains how financial abuse of people with dementia can occur. It also outlines how you can protect yourself or the person you care for from being financially abused, and who to contact if you or a loved one have been a victim of financial abuse. Click "download" to see a list of languages that this Help Sheet is available in.

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Other information
Other information 01: Mild Cognitive Impairment (MCI)
This Help Sheet provides information about Mild Cognitive Impairment (MCI), its diagnosis and what it means to be told that you have MCI. Click "download" to see a list of languages that this Help Sheet is available in.
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